In: In Memoriam
3 Dec 2004My dear friend Betsy is gone after what seemed a lifetime of pain. I am both sad to know that we will never talk and joke again, and happy that she is finally free.
My first memory of Bets and her partner Kathleen was a cry for help on a list for people with chemical injury. They were living in a Chicago apartment during a bitterly cold winter, and had no heat. Like others, I sent what little I could and worried. Later, word came that they were on their way to Arizona in search of a safe, chemical-free place to live. In spite of many tries, they never found one… until Bets’ final stop a few months ago, at a nursing facility in Payson. At last, she was no longer assaulted by pesticides, perfumes or other chemicals. From what Kathleen tells me, the caring staff there loved her spirit and humor… as did I.
Bets was the first person I ever “met” who understood what I was going through. She knew much more about MCS [multiple chemical sensitivity] than I did because she had lived with it for 16 years. She was one of my teachers. She taught me so much about how to protect myself and my asthmatic son from exposures that it’s second nature now–I can’t remember any more what I learned from Bets, from the lists or from others.
A little history here: Bets was one of the early members of the original MCS list on eGroups, long before I joined in ’98 or ’99. Before she became ill in the early 1980′s, Bets was an activist in the women’s movement of the late 60′s and early 70′s in Chicago. She was an auto mechanic who decided to go back to school and get her master’s degree. She became a therapist, of all things, and listening was her greatest joy. I remember that in spite of her own suffering, she was always willing to listen to my problems and offer ideas and support–including advice on buying cars, a handy skill indeed.
Two years ago, when the list owners decided to close down and train moderators/owners for a new MCS list, Bets urged me to volunteer to become a list owner, a responsibility that seemed overwhelming. “You can do it,” she said repeatedly, until I realized she was right. I’ll always be grateful that she kept after me about it. We now have close to 450 members, and I know that some of them are alive because of MCS-CI-Hope2.
Betsy’s email address includes the word “hope”, the word that best exemplifies her spirit. She never gave up hope of getting better, of breathing fresh, clear air. The fact that she never found a safe place until too late is a bitter irony, a reminder for all of us of what a dangerous world we live in.
Bets’ story is not an easy one to hear when you know that you are just one exposure away from homelessness yourself. Hope is not what comes to mind. But hope is what kept Bets and Kathleen going through some of the toughest stuff that anyone has ever had to live through. At times, hope was all they had. Bets’ endurance and Kathleen’s devotion were an inspiration. I hope I never have to live up to their example.
I will miss Bets’ humor, patience and wisdom but I am happy for her. Nothing can hurt her now.
As Kathleen says, “May Betsy’s spirit fly high, run free and soar with the wind.”
Amen.
I'm not really famous. In case you were wondering. But I tried. I once believed that fame makes you real - a perversion of "The Velveteen Rabbit" theme that love makes you real. Guess I equated fame with love. Sad. You can read more about that here.